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Pressing for greater public and patient participation in health research and practice.
Looking to ensure that the new NHS Secure Data Environments (SDEs) have patient and public members in their governance to ensure a pragmatic and trustworthy approach to foster trust with pragmatism.
Work that arose from the experience of my wife suffering mini-seizures and regularly being 'blue lighted' to A&E when the event had passed before she was put in the ambulance has now been published in the BMJ.
Noble AJ, Lane S, Lloyd P, et al. ‘Blue- lighting’ seizure- related needs in care homes: a retrospective analysis of ambulance call- outs for seizures in North West England (2014–2021), their management and costs, with community comparisons. BMJ Open 2024;14:e089126. doi:10.1136/ bmjopen-2024-089126
Morris Beth, Louise Roper Adam J. Noble, Peter Lloyd, Tom Shillito, (2024), “In the wilderness…dealing with difficult situations”: Knowledge exchange with care home staff in England on managing seizures and epilepsy – An initial exploration". Epilepsy & Behavior 158 109936